Who you support?

 

This is our official online store for Alex - The Leukodystrophy Charity. We have 5 charity shops across South London and when buying from our online store you are helping to support families affected by this rare genetic disease. 

We provide support, advice, knowledge, and care for those affected by genetic leukodystrophies. The majority of these rare conditions are largely untreatable and sadly terminal.

 

Watch our story and the work we do below:

 

What is a Leukodystrophy?

Leukodystrophies are genetic disorders that mainly affect the white matter of the central nervous system (i.e. the brain or spinal cord). Most leukodystrophies are degenerative, causing symptoms such as impaired mobility, vision, speech and hearing, incontinence, inability to swallow and loss of cognitive skills. In some cases, they can sadly be terminal.

Our aims

  • Enable more patients, families and carers to access vital support and information
  • Connect patients and families to others living with similar disorders
  • Raise awareness and improve public and professional education through events and campaigns
  • Advance medical research to find better treatments, enable early diagnosis and increase life expectancy. 

For more information visit our charity website : http://www.alextlc.org 

If you would like to make a monetary donation to our charity: 

https://www.alextlc.org/ways-to-donate/